Lymphoma DiagnosisWe received the gut-wrenching news that haematology consultants at Children's Hospital of Wales, Cardiff believed Ryan had a very rare form of Lymphoma, known only to Asian and Latin American populations of men over the age of 50.
Up to this point Ryan had been ill for the preceding 2 years battling glandular fever that never improved and I battled with GPs to try and discover what was wrong.
The Battle Chooses YouThere were still further tests that were needed, as a few of the experts were baffled to see this cancer in a 14 year old Western European caucasian boy. We were given the confirmation diagnosis of EBV positive NK/T-cell non-Hodgkin Lymphoma in September 2016. It is a bit of a mouthful literally as the lymphoma caused a soft tissue tumor to form in his throat.
Steroid Chemotherapy commenced while planning began ready for 5 weeks of intense Radiotherapy before embarking on six months of SMILE chemotherapy protocol.
Glandular FeverRyan's medical team consists of haematologists, pathologists, histologists, immunologists and endocrinologists, who all agree that Ryan's episode of Glandular Fever in 2015 set off a chain reaction of the Epstein-Barr virus invading his T-cells ultimately causing the cancer. The children's hospital in Wales have never used the SMILE Chemotherapy protocol before.
Only one other adult is known to have had NK/T-cell in Wales approximately ten years ago and I have found only one other adult male in England that battled the same diagnosis two years ago. I have searched the world to try and find another child that had gone through this same treatment, but have yet to find another. As much as I do not want any other child to have suffered this, I cannot believe that Ryan really is that unique.