Pembrolizumab is one of a number of immunotherapy treatments that are revolutionising the fight against Cancer around the world. The future of medicine may eventually see these treatments used as the first line of defence against Cancer, which does not affect neutrophil counts or cause hair loss 2 of the biggest disadvantages of chemo.
A communication passport is a way of supporting a vulnerable person with communication difficulties when they have to transition through different events, such as changing schools, or their first job. In Ryan’s case, we made a new specific communication passport for his medical file so that all the medical professionals could learn a little about Ryan before they met him and therefore be better prepared and able to interact with him.
Some of you may remember back in November 2016 we published a post called I Am which was a mini-interview with Ryan that gave an insight into his autistic mind. To end this year rather than doing a round-uppost we wanted something a little more light-hearted as our recent posts have been anything but. So here goes. Grab a quite break and enjoy...
For over a year I have shared with you Ryan's lymphoma journeywe talked about the ups, the downs, the protocols for drugs, the side effects, but I realised recently I've never shared the questions. This post is all about what to ask when you receive a diagnosis of cancer.
Ryan awoke on Monday 11th September and told me he had an ulcer. As soon as he showed me I knew it was not an ulcer, I knew his lymphoma is back. We had an appointment with his oncologist at clinic the following day. The consultant agreed it needed a biopsy. He photographed and emailed our oncology team in Cardiff from the treatment room in Carmarthen hospital. Dr A also advised me that my dentist see the oral mass as it was my dentist that noticed the original changes last year.
If you read any news articles on education, correspondence from your child’s school, or are simply clued up on parenting then you will know the importance of attendance. Schools place a great deal of focus on targets and will often offer incentives and competitions to encourage and increase attendance figures, but what if your child has a serious illness. What happens if they really are not well enough to attend school. What happens then?
Yesterday 5th August 2017 we hit a new milestone. Three months post chemo and cancer free. I can't believe the progress Ryan has made, it has astounded even me. The doctors are impressed and I'm impressed. His hair is growing back beautifully. It just looks like a really short crew cut now. He has put on a wonderful amount of weight that puts him now absolutely on the typical average scale for his height and age. He also no longer has Adrenal Insufficiency either which surprised even the doctors that he recovered so quickly.
Ryan finished his first round of treatment on his brother's 18th birthday in May 2017. The last two years and eight months were a blur of stress. Yet coming to the end of treatment coincided perfectly with Cancer Survivors Day on June 4th so what better way to mark this day than with our own survivor story.