Sunday, 30 April 2017

Cycle 5

With this being our penultimate cycle I have had several family and friends comment to me “oh I bet you can't wait to get back to normal”. This has really thrown and upset me because it seems to come across that they have failed to comprehend the fact that we have 2-3 years of maintenance ahead, at least 2 more general anesthetic surgeries. Not to mention physiotherapy as it is expected Ryan will take 12+ months to heal from the effects of being poisoned from the inside out. Normal is long way off yet.

Sunday, 23 April 2017

Febrile Neutropenia


Medicine, vial, chemo, bottles



Ryan completed chemotherapy cycle 4 of 6 in March. We were discharged and managed a week at home before he was unfortunately admitted to Carmarthen hospital with febrile neutropenia. This is a whole body reaction to an infection when there is a low immunity due to chemotherapy. His temperature reached 40.1C and his lymphocyte white blood cell count was 0.2. When the count falls below 1, this is called neutropenia and infections become a high risk.

Thursday, 6 April 2017

Cycle 4

Epstein-Barr Virus Lymphoma



Ryan's lymphoma is being driven by the Epstein-Barr Virus which causes glandular fever. The EBV invaded his T-cells whilst he had Glandular Fever and turned them cancerous causing dysplastic lymph cells to grow in his throat resulting in a soft tissue tumour forming.

Monday, 3 April 2017

APRIL is Autism Awareness Month

April is Autism Awareness Month. www.bellybuttonpanda.co.uk

Autism Awareness

The month of April is given over to Autism Awareness Month with hundreds of activities and events taking place to raise awareness and much-needed funds for the National Autistic Society.


It begins with World Autism Awareness Week taking place every year from 26th March and cumulates with World Autism Day celebrated on 2nd April each year. The week aims to raise awareness, with educational events, exhibitions, social media posts and discussions, bringing people from all walks of life together.

Sunday, 2 April 2017

Myths and Misconceptions

Myths and Miscnceptions, Autism, www.bellybuttonpanda.co.uk


Myths and Misconceptions

Education is the most powerful weapon which you can use to change the world. ~ Nelson Mandela.

The aim of our blog is to educate and help just 1 person to support their child better. We hope to change perceptions of Autism and living with an invisible challenge; but with so many myths and misconceptions out there it really is a 1 step forward, 2 steps back process, although that is half the fun of constantly challenging ourselves to find new ways of getting our message across.